I'm practically asexual at this point

[Canari]

I don't have PFS and Iisten. For me your problems are not invisible. Also because for me, many similar problems though not due to PFS are visible. The difference is that I have the right information. And even if you are the ones who feel what you feel, I am not sure you know exactly what is happening in your nervous system. I know I have been pushing a lot in this direction, just because I know it helps, and I do not mean to replace any protocole for healing. But I know that regulation of the nervous system helps even before healing and facilitates it. I am sure that the ones who react the best to protocols are the ones with the best resilience. Resilience can be increased.

People who do not listen are just not understanding the nervous system part of the problem. You are all brave, you think about others, and your loved ones are just helpless from not understanding and not being able to help! And yes suicide hurts, I have lost somebody from suicide, and it is much more difficult to recover from this than what you can think!

 

[PAS]

What happened to you @Canari? You talked about dissociation in the previous page. And what do you suggest for us to do with the nervous system?

 

[MNK99]

I've said the same about mental illness... whether legitimate or just diagnosed as part of the psychiatric medicine machine...
it's invisible and it hurts. But, people want us around. We need to be better and stronger rather than wish things were easier. I know how you feel guys.

 

[Canari]

@MNK99 , it is not mental! This word is what prevents understanding. There are things that are mental, if you mean that the CNS is damaged. But when your thought are running too high, this comes from your mental part TRANSLATING in words the physiological part. You all know that the big change in you is about your body feeling, don't you? And this is ANS caused. And remember that this numbness is there also to protect you from feeling more. It is derailed, I agree, but the basic function of the freeze or dissociation or anestesia, is to protect us. Just look at videos of animal who seem dead from the shock and then escape the lion!

@Lost, I understood dissociation only when I learned about it. I have this tendency coming from my pregnant mom working in a lab, which gave me prenatal freeze response already. So I was a shy child, suceptible to bully, and the more people told me to be more natural and alert, the more awkward I was feeling. Then I had various hard life events as well and lacked support because i am not good at getting it... But you know you do not get the support you need, so it might not be me, but cultural misunderstanding? People who have a problem but who are socially very engaged, get support. Frozen people do not get support because the freeze response is what makes your need invisible! Does it make sense when you see around who obtain support and who do not?

I had a general para-sympathetic state, and when i started to come out of it, it was too strong, and I had convultions. Which means the shaking, which is normal, was too strong. There is sympathetic highly active under the freeze response, and when you unfreeze all the north pole at once, you get a stunami!

 

[Canari]

And what do you suggest for us to do with the nervous system?

This is individual, you have to learn about it. it is easier than all the domino effects of mineral though!

Then you can start to self-regulate so that you can come out of the freeze response. Even if it does not work fast, the best you can do is to go on. When you enter school, you know that you are not going to enter university the next year. But you do not give up, and you get some interest in the progress and in the learning, and you can get passionate about some topics... Maybe one of you one day will be a leader in teaching people how to respect what they do not understand from a relative or friends passing through problems they cannot see, and how to trust them, trust what they say they feel. It is the quality a mother need to get when near a child having an accident, to not panick, to not add a charge. This means to have a larger window of resilience, a larger capacity to relax after stress, and to be able to alternate stress and relax. Most people alternate stress and stress!

My first suggestion because it is possible to do it right now, is to use the stress reduction forum and what I wrote, and ask and check out if you understand it and want to know more. If you can follow your body sensations in terms of knowing what is going on, it is a bit more "known territory" and more comfortable.

Then what you can do has to be tailored, nearly. I suggested the online support I also use for myself. You have to pay for it but it is reasonable for what you get all the time you need. You can try the first lesson for free here.
It seems "nothing" and easy, but we have forgotten this easy stuff, and it can be even challenging for some!

Here is her free group Log into Facebook | Facebook but you have to ask entry there. Watch the videos, i have made a topic about nervous system healing and irene Lyon and her site and youtube channel. That's free resource too. Then practise and feel yourself. It is even better than meditation. Actually, you understand how to meditate better when you know your nervous system!

Those who meditate do not have overnight result, but they still do it. There are stuff that are more potent and efficient than meditating, but meditating can be a start. I have read article from people who understood they did it bad only 20 years after! So better to do it right. You can meditate to dissociate and feel less, you feel one with everything, but then you have to come back haha. Dissociation is tirering and is never meant to be all the time! Then you can meditate to be more present, here and now in your body. You can do body scan etc, minfulness. But when there is freeze response in the body, you need to understand what happens to you. Super important.

 

[Ailaeshiz]

I meditated for three years and it never made a difference. This is more scam pseudoscience meant to take advantage of people. It's a shame how prevalent it is with PFS and PAS sufferers, but that's to be expected when the medical community turns a blind eye to your plight.

 

[Canari]

I meditated for three years and it never made a difference. This is more scam pseudoscience meant to take advantage of people. It's a shame how prevalent it is with PFS and PAS sufferers, but that's to be expected when the medical community turns a blind eye to your plight.

Yes and no... No, they just did not tell you about how to meditate for what effect!
Actually, as meditating seems often practised by some members, I did not want to dismiss it, but it is too often that it does not work! No it is not a scam though.

Can you described what you were told to do for meditating?

I can meditate but I am actually not a proponent of it. I propose to those who want to meditate, to do it in a more efficient way.... by knowing what happens in you and what are the different things you can do.

Most meditations are like Buteyko breathing: uncompletely explained and not taking into account different necessities.

 

[BeLikeWater]

I can understand all your words and why it happens like this. Instinct and impulse are sympathetic system, and all you describe is exactly a parasympathetic response making you separated from the instinct, with your thinking and your memory replacing what usually comes from the body own decision.

Today I was a little bit harrassed by a guy that insisted too much, and I got a dissociation response during a moment: he was just looking foreign, or "on a screen". Just to tell you that what you describe is not only a PFS sign. These are general signs of partial freeze or dissociation in the ANS, and what seems important is to see if you have some unnatural feelings in other circumstances of life. The signs are what you say: confusion, nothing is natural, you act thanks to your memory but you are not present, you feel you look at a movie that is not real, you feel in a bubble, things look foreign. Also feeling gravity less, numbness.

So you are proclaiming that the despersonalization that we suffer as PFS patients its caused because we have an overactive parasympatic action?

 

[BeLikeWater]

I don't have PFS and Iisten. For me your problems are not invisible. Also because for me, many similar problems though not due to PFS are visible. The difference is that I have the right information. And even if you are the ones who feel what you feel, I am not sure you know exactly what is happening in your nervous system. I know I have been pushing a lot in this direction, just because I know it helps, and I do not mean to replace any protocole for healing. But I know that regulation of the nervous system helps even before healing and facilitates it. I am sure that the ones who react the best to protocols are the ones with the best resilience. Resilience can be increased.

People who do not listen are just not understanding the nervous system part of the problem. You are all brave, you think about others, and your loved ones are just helpless from not understanding and not being able to help! And yes suicide hurts, I have lost somebody from suicide, and it is much more difficult to recover from this than what you can think!

I know when I have got very very angry I felt a relieve of symptoms and felt alive again so it makes sense- what is the history about Calcium, how its related? I think Irene Lyon is nice.

 

[Canari]

So you are proclaiming that the despersonalization that we suffer as PFS patients its caused because we have an overactive parasympatic action?

It is both sympathetic and parasympathetic at the same time, and this is the problem. They should be alternate like a see-saw scale. I liked the old logo of balance because of this....
When you are suffering any agression, you are in sympathetic, but in sport too.... just less!
If your sympathetic stays high too long, the body cannot stand it, and decide to still send you the normal parasympathetic state, but OVER the sympathetic activation! This sucks all energy! Then you can alternate between anxiety (symp, said SNS) and depression (para-symp = PNS)
Depersonalisation is when you are in that state too. In depression you are to olow, in dpersonalisation you are too high... you can also say too much inside you or too much outside... we should be both inside us, first, and then expand outside but without going out of ourselves. When we learn to go out, then we must learn to go back, which is another subject! Well, it happens in Near death Experience NDE... though most people stay dead when this happens!

I know when I have got very very angry I felt a relieve of symptoms and felt alive again so it makes sense- what is the history about Calcium, how its related? I think Irene Lyon is nice.

It is good to let it out as the steam, but the best is to let the fight energy out without even having to get angry! When you get very angry and you take the habit as a coping mecanism, then you become hard on others life.... If you manage to get angry just with the imagination of the person when you anihilate the person, then you are good to everybody and do not forget yourself!
And in SE, we let out the energy, much more energy, without the overwhelm of uncontrolled anger, and this increases the capacityt to stand anger without getting mad!
Irene and her husband Seth Lyon have veeeery good videos with examples of how to deal with anger, and develop what is called HEALTHY AGRESSION.

If you can connect with memory to the "feeling alive again", that is very helpful. When you feel this, you learn something very important for your health! And you can notice that this is efficient and does not need any supp! Go all ways at the same time!

 

[EsQimo]

@Canari If you want my opinion, PFS PAS etc are maladies that induced by drugs.
They cannot be solved with meditation.
They are complex neuro-endocrinal disorders.
They can affect your brain, your gut, your genitals, your hormones or nervous system.
Its biochemistry.

In our condition I believe its better for us to feel nothing.
For what its worth to be a dead man with feelings?
Only for torturing yourself more and more...

 

[Canari]

@Canari If you want my opinion, PFS PAS etc are maladies that induced by drugs.
They cannot be solved with meditation.

I agree, not with meditation and not with medication either!
I meditate as a plus, no more, not at all the main practise.

They are complex neuro-endocrinal disorders.
They can affect your brain, your gut, your genitals, your hormones or nervous system.
Its biochemistry.

Right, as the nervous system is like the chief of orchestra! It is even above the endocrine system and direct it.

In our condition I believe its better for us to feel nothing.
For what its worth to be a dead man with feelings?
Only for torturing yourself more and more...

Right too... feeling nothing is a freeze response of the nervous system, to protect you from excessive feelings.
When you remove the freeze from the nervous system, you feel the pain more, that is why any nervous system work, at somatic level (the electric system/nerves), must be progressive. It is like when you have a blocked drawer: you need to move it right and left alternatively, to not block it more.

There is no other way than to work little by little on both chemistry and electrical rewiring, because the more the freeze response, the less what it controls can work that is to say, guts, and immune system first of all.

 

[bruschi11]

I don't think any of us could be blamed if we just committed suicide and got it over with. Noone is willing to listen to people with invisible problems so why bother?

Heard this guy actually committed suicide.

Such a shame. Way too much information out there to give up at this point. RIP.

 

[Pedro melo]

Oh

Heard this guy actually committed suicide.

Such a shame. Way too much information out there to give up at this point. RIP.

My god. I'm crying right now... What a fucking pill can do. And totally agree with him our pfs problem seem invisible to medical eye, family eye whatever. I'll fight this stupid conditionn/ deasease. For this brother too

 

[Area-1255]

I managed to have sex today, and it was easily the most confusing sex I've ever had in my life. I had no idea where to put my hands, when to kiss, how to thrust. It was all so foreign, like my body couldn't even understand the concept of sex. Nothing came naturally. The whole time I felt like I was just acting how I was supposed to act instead of just being in the moment. And when it was all over I experienced pain in my lower abdomen. It's amazing just how much I was relying on instinct and impulse prior to all this. Now I have to overthink every action I make, as I'm making it, just to appear as a normal human being.

Well when your libido is DIMINISHED - then you [effectively] LOSE that Instinct - you WILL be confused...because there is a lack of disinhibition associated with Sexual-Desire - INSTEAD - that low Sex Drive creates a relatively Emotionless-State; that is then replaced with Anxiety/Over-Thinking Things/Over-Analyzing sh!t.

...It sounds like you are having Low Libido + Cognitive Issues; most likely you have HIGH Serum Serotonin-Levels.
I would look to the Sky to find Your Answer.
You can try things like Shilajit + L-Tyrosine + BCAA to change things in Your Favor.

 

[Stud]

just hop on all kinds of gear, buddy
testosterone, pregnenolone, DHEA, proviron, masteron, anavar, andro's the more the better

 

[bruschi11]

Well when your libido is DIMINISHED - then you [effectively] LOSE that Instinct - you WILL be confused...because there is a lack of disinhibition associated with Sexual-Desire - INSTEAD - that low Sex Drive creates a relatively Emotionless-State; that is then replaced with Anxiety/Over-Thinking Things/Over-Analyzing sh!t.

...It sounds like you are having Low Libido + Cognitive Issues; most likely you have HIGH Serum Serotonin-Levels.
I would look to the Sky to find Your Answer.
You can try things like Shilajit + L-Tyrosine + BCAA to change things in Your Favor.

If you read the thread like two posts up you’d realize he committed suicide.

Here’s link.

Loss of Post-Finasteride Syndrome sufferer lashes_to_lashes

Really incredible.. Axoloti (hates experimenters and all things hackstasis) goes on to say how “he experimented with resveratrol and look what happened after.” As a don’t experiment advisory. So pathetic.

 

[MNK99]

-Yeah that Axoloti guy seemed nice ish (or did to me, still doesn't mind me despite me telling all of Solve pfs to fuck off) -- but I was pissed off it was a temp thing... but still.
-Anyways he's kind of a jerk/clown. Seemed nice - past tense.
-I took Resveratrol just to try with DHT stuff (I mean 4andro, not shooting DHT). ANd* Yeah no change or maybe slight change... but certainly I did not crash nor die.
-No experimentation? Pretty sure I'd have no life plans, be very overweight, no digestion, in bed, and dead for sure at some point if not like 400d ago.
-So for that.... preventing ppl from doing what it takes to succeed in this catastrophic state of PFS --- that's a bitch move for sure on Axoloti's part.
-I mean XP is gone or will be... He was a mod. JQD is gone why bc one's cured, the other believes forums are bad and that SOLVEPFS is bad... and he was a mod.
-AND he's doing a lot better too. SOME meds or Test and stuff helped... JUST like some are ok for me and some great, most useless and many v destructive tho***.
-SO if the mods leave... obviously.. others should too.
-I read that other guys thing a bit... claiming kidney disease. I freaked out for 1/8th of a second, closed it and blocked it again.

-ALSO them trying to discredit Hackstasis all the time and woe is me all the time... is a massive disservice to the community. Sick people... don't just die or live ill forever and miserable, all the time... -PH and SOLVEPFS will have you forgetting that.

 

[MNK99]

-I spoke to someone here. Suicide thing in many cases --- is family not believing / supporting a person (like in tons of illnesses, i had a friend with bipolar, another who had similar issues), and also rem reading about that Aussie kid with pfs. Also various other suicides and early deaths. Anyways... I get it. It sucks. I think they're right and actually know it, bc that's what hurts the most... people "close" that let you down or don't believe in you --- especially in a desperate state. That's traumatizing for sure. --I advocated for students at my last uni with certain health issues, and in general, and a ton for myself. It's draining for sure, but if some speak out, then it gives courage for others to do so, and that awareness and honest and open discussion can actually make a significant difference. And at times, even save a life. No one deserves to go thru this stuff nor other things like it... misdiagnosis, being given meds that the prescriber can't even comprehend.

-I was recommended Latuda and Saphris when Lamotrigine stopped working (due to UGTA14 inhibition in the liver, by Fin). Glad I didn't take those and never will.
-I was on the highest ranked meds for BPII and ADHD (well I quit that before I guess or ran out but ideally I was supposed to be on both), then weeks later had PFS.
-Pretty crazy ordeal.

-It's like Depression, or certain disorders (probably all of them), or alcoholism -- it really is a "Family Disorder". Not just affecting and not just created by or felt by one person, but can affect an entire family. -No Support it's brutal moreso than even ordinarily.

-Also I spoke to Ailaeshiz. May he rest in peace and his family and loved ones find peace. It is really horrible, rest in peace mate.

 

[Ocguy]

I can totally relate to this kid and pass zero judgememt.. this problem is particularly cruel in that were basically already dead inside yet just alive enough to exist in this extremely limited physical form..

this is along the same lines as these poor babies that get pumped full of vaccines and then develop autism. Lives ruined by big pharma.. I do believe there is a satanic force that gets off putting souls in cages

May you find the peace you deserve Ailaeshiz and the wisdom to avoid advice from false prophets should you meet them in the other realm. May god bless you!