Corpus Cavernosum Fibrosis

[Ulysses]

Has anyone had experience treating this? Got an ultrasound done and have moderate to severe scarring of my penis tissue. I am 28 and it was definitely caused by finasteride.

I don’t know how to beat this guys. Androgens seem ok. Not terrible enough to cause the sexual problems I’m experiencing according to Goldstein. It took me about 6 months to feel mostly back to normal mentally. Yet I still have severe sexual sides.

Maybe a penile transplant is my only way out. That sucks.

 

[TubZy]

DMSO, vitamin K2, topical DHT, proto enzymes, gelatin can all break up fibrosis. Even fasting too, but I would fix PFS first and that would probably take care of most of it.

 

[joekool]

So odd to see this topic as it's something I've dealt with as well & just found more information about it today... To add to Tubzy's posting:

DMSO is a vasodilator ... so applying it right to your penis gets blood flow going.
L-Arginine helps with nitric Oxide and also gets good blood flow going. This is the first step I've noticed that helped me with my issue. (I had an hour glass shape from Finasteride that has subsided dramatically in recent months)
Acetyl-L-Carnitine supposedly helps repair nerves & scar tissue, with results in the Peyronie's community so that's a suggestion.

I also read Vitamin E & PABA (never used PABA yet) helps here as well... choline CDP as well...

But it's worth noting the penile tissue is elastic and built to heal. All scar tissue dissipates over time. But we're talking 6 months to 3 years here. Tubzy is right as well, if your hormones are back to normal and nocturnal erections are returning, then healing will happen on its own.

 

[Aleksandr]

Systemic enzyme therapy is supposed to eat scar tissue. Worth a shot

 

[wuf]

Has anyone had experience treating this? Got an ultrasound done and have moderate to severe scarring of my penis tissue. I am 28 and it was definitely caused by finasteride.

I don’t know how to beat this guys. Androgens seem ok. Not terrible enough to cause the sexual problems I’m experiencing according to Goldstein. It took me about 6 months to feel mostly back to normal mentally. Yet I still have severe sexual sides.

Maybe a penile transplant is my only way out. That sucks.

At the first years of my PFS I have had the same issue.
Penis scarring of tissue plus little calcification balls.. they were even hurting when erected.
Years healed it all... I just let time pass cause I didn't know what to do. Big pain but it will heal alone by time.
I don't want to give you the wrong suggestion. But this was what happened to me.

 

[Oscar]

Peyronis. I also suffer from this. I have since last June. I wish there was an easy solution. Mine is calcified, which complicates things. It's meant shortening and about a 40 degree angle. Depressing.

I've tried 10 rounds of Verapamil injections with no improvement.

I started traction about a month ago. I'm hoping that helps.

Just started Pentox, 3x 400mg daily. Also on L-Arginine and -L-Carnitine.

My insurance denied Xiaflex...I'm currently in the appeals process.

If anyone has other suggestions, I'll try just about anything to beat this.

Oscar

 

[Ulysses]

See I don’t have peyronies guys. I have corpus cavernosum fibrosis inside my cock. The androgen deprivation mixed with the priapism I had for 4-5 hours following my Doppler ultrasound due to the fact that my urologist was a fucking moron caused it. Priapism is a huge cause for permanent erection problems. And permanent damage using starts occurring after 6 hours from what I’ve read but that is in healthy guys with normal hormones etc.

Yah I feel like my PFS is starting to subside. Feeling more normal. Getting soft morning erection. Libido seems ok. But my dick is awful, cannot maintain erections very well, mainly because my dick just doesn’t get as swollen and big as it used too. It’s way smaller erect. And goldstein told me this is permanent as I have pretty bad scarring inside my penis tissue due to lack of oxygen and low androgens over time. I took that shit for one month it is mind blowing.

Anyways I have done one PRP shot and will probably do a second. They aren’t cheap but fuck man I want my cock back.

 

[RedStaR]

See I don’t have peyronies guys. I have corpus cavernosum fibrosis inside my cock. The androgen deprivation mixed with the priapism I had for 4-5 hours following my Doppler ultrasound due to the fact that my urologist was a fucking moron caused it. Priapism is a huge cause for permanent erection problems. And permanent damage using starts occurring after 6 hours from what I’ve read but that is in healthy guys with normal hormones etc.

Yah I feel like my PFS is starting to subside. Feeling more normal. Getting soft morning erection. Libido seems ok. But my dick is awful, cannot maintain erections very well, mainly because my dick just doesn’t get as swollen and big as it used too. It’s way smaller erect. And goldstein told me this is permanent as I have pretty bad scarring inside my penis tissue due to lack of oxygen and low androgens over time. I took that shit for one month it is mind blowing.

Anyways I have done one PRP shot and will probably do a second. They aren’t cheap but fuck man I want my cock back.

I've had some shrinking up of the penis coming off finasteride as well.

The best things you could do according to scientific literature is: Testosterone/DHT therapy, penis exercises, and low-dose Tadalafil before bed every day. The latter two helped me a lot and I'm gaining back to the size I was pre-fin.

 

[freeflow]

See I don’t have peyronies guys. I have corpus cavernosum fibrosis inside my cock. The androgen deprivation mixed with the priapism I had for 4-5 hours following my Doppler ultrasound due to the fact that my urologist was a fucking moron caused it. Priapism is a huge cause for permanent erection problems. And permanent damage using starts occurring after 6 hours from what I’ve read but that is in healthy guys with normal hormones etc.

Yah I feel like my PFS is starting to subside. Feeling more normal. Getting soft morning erection. Libido seems ok. But my dick is awful, cannot maintain erections very well, mainly because my dick just doesn’t get as swollen and big as it used too. It’s way smaller erect. And goldstein told me this is permanent as I have pretty bad scarring inside my penis tissue due to lack of oxygen and low androgens over time. I took that shit for one month it is mind blowing.

Anyways I have done one PRP shot and will probably do a second. They aren’t cheap but fuck man I want my cock back.

I have a friend who has this, his name is [mention]Slayo[/mention] here. He was experiencing full reversal of penile fibrosis on his 10 days of water fast. Unfortunately he couldnt continue his water fast as he was severely underweight.

 

[Ulysses]

Ok guys.... so slayo.... did he actually get a test done to confirm fibrosis or did he just feel like his dick was smaller.

Wuf. Did you get a test done to confirm fibrosis or did you also just feel like your dick got smaller too.

Sorry lads but unless you actually got a test done to confirm fibrosis and then tried a treatment and got another test done and saw it reversed or the treatment obviously worked and you are 100% back to normal then I’ll believe that treatment. There are so many PFS guys who just feel they have shrinkage or their dick is smaller etc. With absolutely zero proof they actually have scarring.

Doc Goldstein told me it is irreversible and unfortunately I highly doubt a 10 day water fast would cure it. If this shit worked no one would have a penile implant or have to inject basoacfive drugs into their cock. They would all just fast and be good to go.

To the one guy above who said he used low dose cialis every day. How did that work? How long off were you? I have read that guys who undergo prostate surgery are recommended to do this but that’s immediately after the surgery. And they say you have to do this early and anything after 4 months is probably pointless. I’m 7 months off now.

I can’t get full erections. Only semi hard ones with my mind. And I can’t maintain them anymore either. There is something seriously wrong down there.

The funny thing too is that docs seem to jump all over the place and there is so much differing info out there. Before finasteride I read about penis scarring but read it was reversible in the rat. Then I read an interview from Goldstein where he said penile fibrosis is reversible with the reintroduction it androgens. But then when I went to see him in his office he told me that it’s permanent and my only options were to try his experimental PRP and then if that didn’t work I’d have to inject my penis for life.

I am currently in clomiphene and arimidex but I don’t really feel any different.

What a fucking nightmare. Where is that in the literature Merck. Penis scarring. Total lack of blood flow to the cock. You bunch of fucking crooks.

 

[joekool]

What made you go with Clomid & arimidex??

Do you have libido at all?

How long would you say your PFS has subsided?

Low dose cialis is typically 2.5mg to 5mg daily... in my opinion, it might be worth considering only to get blood going there in full erections before more damage or hardening is done. I would research this fully while you prepare a better approach... or go even lower like 2mg every other day... I truly don't like PDE5 inhibitors but breaking the lack of full erections is an important first step.

The topical DHT has worked for some, which could reintroduce androgens right where it's needed...

I also found this which is somewhat anecdotal but supports what I've heard regarding ALC & ALA.

http://infowomanhrt.tripod.com/EDcureALC_ALA.html

Let us know what you decide but I don't believe it's irreversible . Of all the tissue in the body, it's unique in healing qualities.

 

[wuf]

Ok guys.... so slayo.... did he actually get a test done to confirm fibrosis or did he just feel like his dick was smaller.

Wuf. Did you get a test done to confirm fibrosis or did you also just feel like your dick got smaller too.

Sorry lads but unless you actually got a test done to confirm fibrosis and then tried a treatment and got another test done and saw it reversed or the treatment obviously worked and you are 100% back to normal then I’ll believe that treatment. There are so many PFS guys who just feel they have shrinkage or their dick is smaller etc. With absolutely zero proof they actually have scarring.

Doc Goldstein told me it is irreversible and unfortunately I highly doubt a 10 day water fast would cure it. If this shit worked no one would have a penile implant or have to inject basoacfive drugs into their cock. They would all just fast and be good to go.

To the one guy above who said he used low dose cialis every day. How did that work? How long off were you? I have read that guys who undergo prostate surgery are recommended to do this but that’s immediately after the surgery. And they say you have to do this early and anything after 4 months is probably pointless. I’m 7 months off now.

I can’t get full erections. Only semi hard ones with my mind. And I can’t maintain them anymore either. There is something seriously wrong down there.

The funny thing too is that docs seem to jump all over the place and there is so much differing info out there. Before finasteride I read about penis scarring but read it was reversible in the rat. Then I read an interview from Goldstein where he said penile fibrosis is reversible with the reintroduction it androgens. But then when I went to see him in his office he told me that it’s permanent and my only options were to try his experimental PRP and then if that didn’t work I’d have to inject my penis for life.

I am currently in clomiphene and arimidex but I don’t really feel any different.

What a fucking nightmare. Where is that in the literature Merck. Penis scarring. Total lack of blood flow to the cock. You bunch of fucking crooks.

Tissues damages are always reversible.
If you read some where the opposite, that's not true.
Keep it in mind.

 

[Slayo]

Ulysses, i partecipated to the pfs study, the andrologist clearly saw the fibrotic plaque with the ultrasound machine, howewer he didn't bother too much because the plaque wasn't yet calcified, it was in the pre calcified state (i think it is called collagen build up), howewer the plaque by touch is very noticeable, so i tried a 10 days water fast and lots of syntoms improved and the plaque shrinked by half, when i restarted eating normally after a meal i got a big pain in the point of the plaque and it grew again to the pre fast point. Ulysses your doctor doesn't know anything, our body is extremly good at regenerating, i don't see how a 30-40 days water fast can't get rid of the plaque. Also an idea that has come up in my mind now is that if you have fibrosis with calcium build up why you don't try transdermal sodium edta on the fibrotic point, edta can remove calcium, maybe even applying liposmal edta to that point would work. WHat i also got from pfs is a complete soft gland during the erections, this scares my a lot, my gland can't get blood at all so even during an erection it stays on the exact size and flaccid, all this happened overnight associated with lots of pain, i even seem to have lost all the soft tissue around the penis that makes the underlying structure much more evident by touch and also the penis, expecially about girth looks much smaller. I'm surprised Gbolduev hasn't talked about those sides yet, while i know the fibrotic plaque with very hard work could disappear (there is the hypotesis that they could be also related to immune system dysfunction), i don't know if the soft gland and the loss of structure could be reversed...anyone could tag Gbolduev in order to have his genuine opninon ? Thanks

 

[freeflow]

Ulysses, i partecipated to the pfs study, the andrologist clearly saw the fibrotic plaque with the ultrasound machine, howewer he didn't bother too much because the plaque wasn't yet calcified, it was in the pre calcified state (i think it is called collagen build up), howewer the plaque by touch is very noticeable, so i tried a 10 days water fast and lots of syntoms improved and the plaque shrinked by half, when i restarted eating normally after a meal i got a big pain in the point of the plaque and it grew again to the pre fast point. Ulysses your doctor doesn't know anything, our body is extremly good at regenerating, i don't see how a 30-40 days water fast can't get rid of the plaque. Also an idea that has come up in my mind now is that if you have fibrosis with calcium build up why you don't try transdermal sodium edta on the fibrotic point, edta can remove calcium, maybe even applying liposmal edta to that point would work. WHat i also got from pfs is a complete soft gland during the erections, this scares my a lot, my gland can't get blood at all so even during an erection it stays on the exact size and flaccid, all this happened overnight associated with lots of pain, i even seem to have lost all the soft tissue around the penis that makes the underlying structure much more evident by touch and also the penis, expecially about girth looks much smaller. I'm surprised Gbolduev hasn't talked about those sides yet, while i know the fibrotic plaque with very hard work could disappear (there is the hypotesis that they could be also related to immune system dysfunction), i don't know if the soft gland and the loss of structure could be reversed...anyone could tag Gbolduev in order to have his genuine opninon ? Thanks

[mention]gbolduev[/mention]

 

[Canari]

i tried a 10 days water fast and lots of syntoms improved and the plaque shrinked by half, when i restarted eating normally after a meal i got a big pain in the point of the plaque and it grew again to the pre fast point.

Maybe see with the fast break-fast topic.... What did you eat?
I was very surprised by my instinct to stay with raw food after the juice fast, and I kept bettering even while eating, as long as I STAY VERY LOW IN SUGAR. I am very high in protein and veggies. Raw food made a huge difference.
Sorry to be off topic, wish to go on in food topics!

 

[wuf]

Ulysses, i partecipated to the pfs study, the andrologist clearly saw the fibrotic plaque with the ultrasound machine, howewer he didn't bother too much because the plaque wasn't yet calcified, it was in the pre calcified state (i think it is called collagen build up), howewer the plaque by touch is very noticeable, so i tried a 10 days water fast and lots of syntoms improved and the plaque shrinked by half, when i restarted eating normally after a meal i got a big pain in the point of the plaque and it grew again to the pre fast point. Ulysses your doctor doesn't know anything, our body is extremly good at regenerating, i don't see how a 30-40 days water fast can't get rid of the plaque. Also an idea that has come up in my mind now is that if you have fibrosis with calcium build up why you don't try transdermal sodium edta on the fibrotic point, edta can remove calcium, maybe even applying liposmal edta to that point would work. WHat i also got from pfs is a complete soft gland during the erections, this scares my a lot, my gland can't get blood at all so even during an erection it stays on the exact size and flaccid, all this happened overnight associated with lots of pain, i even seem to have lost all the soft tissue around the penis that makes the underlying structure much more evident by touch and also the penis, expecially about girth looks much smaller. I'm surprised Gbolduev hasn't talked about those sides yet, while i know the fibrotic plaque with very hard work could disappear (there is the hypotesis that they could be also related to immune system dysfunction), i don't know if the soft gland and the loss of structure could be reversed...anyone could tag Gbolduev in order to have his genuine opninon ? Thanks

Hey guys, I can confirm you that I have had these all and it got reversed. I didnt know how to deal with it, so for me only time gave it back to normal, but be less woorried since it is reversible...I experienced it.
Slayo, did you partecipate at Melcangi study?

 

[Ulysses]

Guys. I don’t have peytonies. I don’t have plaques you can touch or feel.... the two tubes on the inside of my penis that fill with blood are scarred. The smooth muscle cells have been replaced with collagen due to low androgens, low oxygen, and a 5 hour ereftion. Priapism and basoactive injection drugs are known to cause irreversible impotence guys. Just google it and you’ll see. Priapism is a medical emergency because anything past 6 hours can cause damage and anything past 12 may be the last erection you get cuz your tissues are in a constant state of hypoxia and the tissue dies!

Peyronies is different, with plaques on the outside that cause bending shortening etc.

Mine are on the inside so my penis does fill fully with blood and therefor the smooth muscles don’t relax enough to shut off the veins going out hence why I have venous leak.

Clomid and arimudex because I still have low FSH and lowish LH, Test is 556. I think I’m naturally higher so trying it out. The theory was to see how I feel cuz there is no real negative to trying these drugs. Cuz TRT may still be an option.

As for my PFS. I don’t know what the duck I have anymore. This is so stressful, lost my fiancé two months before finasteride( she left me) then this, now my job is potentially fucked. So yah all things considered ok probably fucked up from every direction.

I just think my PFS is subsiding because I can at least make my dick move now without have to make it hard. I can get a semi with my mind, I think about woman again. I want to get better and meet a girl again. I eat like shit whereas before I ate so clean and my body is responding I feel the way it used too. I’m not bloated or feeling super gross despite my awful diet. I’m gonna clean it back up again for the next 6 months and hit the gym hard and I think now that my test levels have almost doubled on their own according to labs maybe I’m improving. Who knows.

Goldstein prescribed the drugs and he seems to think I have problems with the actual tissue in my penis. He thinks that if my dick worked again that’s he’s sure my mind would be fine too. Having your dick shrink after taking a prescription med for one fucking month has got to be the hardest thing a guy can go through. We all took finasteride cuz we were self conscious about our hair and now we also have to be self conscious about our dicks. It’s fucking cruel.

I did a PRP treatment into my dick. I don’t know I think it’s somewhat helping??? I don’t know though.

My next one will be in a couple months and I’m going to talk to the urologist at the clinic I’m going to there.

 

[wuf]

Guys. I don’t have peytonies. I don’t have plaques you can touch or feel.... the two tubes on the inside of my penis that fill with blood are scarred. The smooth muscle cells have been replaced with collagen due to low androgens, low oxygen, and a 5 hour ereftion. Priapism and basoactive injection drugs are known to cause irreversible impotence guys. Just google it and you’ll see. Priapism is a medical emergency because anything past 6 hours can cause damage and anything past 12 may be the last erection you get cuz your tissues are in a constant state of hypoxia and the tissue dies!

Peyronies is different, with plaques on the outside that cause bending shortening etc.

Mine are on the inside so my penis does fill fully with blood and therefor the smooth muscles don’t relax enough to shut off the veins going out hence why I have venous leak.

Clomid and arimudex because I still have low FSH and lowish LH, Test is 556. I think I’m naturally higher so trying it out. The theory was to see how I feel cuz there is no real negative to trying these drugs. Cuz TRT may still be an option.

As for my PFS. I don’t know what the duck I have anymore. This is so stressful, lost my fiancé two months before finasteride( she left me) then this, now my job is potentially fucked. So yah all things considered ok probably fucked up from every direction.

I just think my PFS is subsiding because I can at least make my dick move now without have to make it hard. I can get a semi with my mind, I think about woman again. I want to get better and meet a girl again. I eat like shit whereas before I ate so clean and my body is responding I feel the way it used too. I’m not bloated or feeling super gross despite my awful diet. I’m gonna clean it back up again for the next 6 months and hit the gym hard and I think now that my test levels have almost doubled on their own according to labs maybe I’m improving. Who knows.

Goldstein prescribed the drugs and he seems to think I have problems with the actual tissue in my penis. He thinks that if my dick worked again that’s he’s sure my mind would be fine too. Having your dick shrink after taking a prescription med for one fucking month has got to be the hardest thing a guy can go through. We all took finasteride cuz we were self conscious about our hair and now we also have to be self conscious about our dicks. It’s fucking cruel.

I did a PRP treatment into my dick. I don’t know I think it’s somewhat helping??? I don’t know though.

My next one will be in a couple months and I’m going to talk to the urologist at the clinic I’m going to there.

I am still pretty sure it is reversible.
By the way, could it be an idea using a little cialis every evening before bed time?
I remember a doctor prescribed me it to improve erections and blood flow in that area, this could maybe make the healing process faster?

 

[RedStaR]

2.5mg/day before bed is great at improving fibrotic indices, even way after prostatic surgery. It's good for general penile health.

Local androgen therapy and penis exercises are also key here.

 

[wuf]

2.5mg/day before bed is great at improving fibrotic indices, even way after prostatic surgery. It's good for general penile health.

Local androgen therapy and penis exercises are also key here.

Yes, this is right.
I don't want to say the opposite to who claims that no flap is better, but I am pretty sure that in my first recover I had, touching and forcing my penis to work has helped me (just my opinion)...and I remember that I was completelly impotent 100%, plus I had tissues problems- I remember I could touch different little calcification balls in my penis and it was always soring when erected.