Corpus Cavernosum Fibrosis

Canari

Member
Messages
1,609
Ulysses post_id=5154 time=1511738572 user_id=1392 said:
This is so stressful,

I just think my PFS is subsiding because I can at least make my dick move now without have to make it hard. I can get a semi with my mind, I think about woman again. I want to get better and meet a girl again. I eat like shit whereas before I ate so clean and my body is responding I feel the way it used too. I’m not bloated or feeling super gross despite my awful diet. I’m gonna clean it back up again for the next 6 months and hit the gym hard and I think now that my test levels have almost doubled on their own according to labs maybe I’m improving. Who knows.

It’s fucking cruel.
This is stressful, this is cruel, but man, you are a fighter! Thumbs up!
Though a lot of things are reversible and there are testimonies, Your doubts are very understandable, and of course this is scary! Who has not been afraid for some health issue?
And being hurt by a prescription med is just unfair and more than unfair! It happens more and more and we have to fight this, this is the same battle as against any other med!
I was just wondering, though both stresses are big, if the biggest stress for you is the fear of irreversibility or the anger against unconscious labs and doctors?
 

Ulysses

Member
Messages
29
biggest stress is the fear of reversibility, never having a wife or kids, and potentially losing my dream job.

My doctor forgot to prescribe me cialis on my last visit which was super annoying. So now I have to wait two more weeks to get it and cialis is not cheap at all.

I will be taking 5 mg every night before bed. I have read after prostate surgery you have to take it right away though and that immediate treatment is important to regaining erections, and anything after 4 months is pretty much permanent. This was an excerpt I read from a doctor who performs these surgeries. I am now 7 months off so I am pretty sure things are past the healing point now. Who knows anymore.

I am a fighter man and have been all my life but literally everything I loved and cherished in my life is gone now. My fiance, my sexual mental and physical health, and my dream job (still not lost but in jeopardy). So yah things are rough right now. The will to keep fighting is pretty much gone, especially with something that a doctor tells you is irreversible.

How do you break that to a woman your dating? That your dick doesnt work and you have to inject it before sex, or that you have a penile implant. With my job I can't even take viagra as I operate very important machinery. They make you disclose all medications you take and if an accident occurs and they draw blood and find meds you are ruined. (JAIL)
 

wuf

Well-Known Member
Messages
880
Ulysses post_id=5186 time=1511789993 user_id=1392 said:
biggest stress is the fear of reversibility, never having a wife or kids, and potentially losing my dream job.

My doctor forgot to prescribe me cialis on my last visit which was super annoying. So now I have to wait two more weeks to get it and cialis is not cheap at all.

I will be taking 5 mg every night before bed. I have read after prostate surgery you have to take it right away though and that immediate treatment is important to regaining erections, and anything after 4 months is pretty much permanent. This was an excerpt I read from a doctor who performs these surgeries. I am now 7 months off so I am pretty sure things are past the healing point now. Who knows anymore.

I am a fighter man and have been all my life but literally everything I loved and cherished in my life is gone now. My fiance, my sexual mental and physical health, and my dream job (still not lost but in jeopardy). So yah things are rough right now. The will to keep fighting is pretty much gone, especially with something that a doctor tells you is irreversible.

How do you break that to a woman your dating? That your dick doesnt work and you have to inject it before sex, or that you have a penile implant. With my job I can't even take viagra as I operate very important machinery. They make you disclose all medications you take and if an accident occurs and they draw blood and find meds you are ruined. (JAIL)

You are listening to doctor who are the one ruined your life, so why keeping trusting them?
Taking cialis is something could help improving your situation, who cares about job and analysis if an accident occurs?!
Do it, no way.
I understand your fear and everything, we are all in the same situation.
I repeat, I am sure 100% that tissues damages are reversible, 100%....first because it happened to me, second because I am in contact with a biolog doctor who just yesterday told me exactly this...tissues are always reversible.
 

Canari

Member
Messages
1,609
[mention]Ulysses[/mention] I can answer as a person and as a woman...

As a person I saw you can fight and this is good to cherish this power you still have, the sun is just behind clouds. Take some time often to see what has gotten better already, it is important to do it though it seems little.

If you can relate 1) thinking about what comes to your mind + 2) feel how it feels physically and further than the emotion, in you and 3) if you get some changes in the way you feel, this will always help. Our feeling always change, see my signature! A big tip is to notice changes! Then take time to stay on the feeling when you notice a change, and let it install it in you when it is a good change. We never take enough time to feel how good is a good change!

Also, concentrating on the fight will leave less room for the fears, that are well justified though there is still hope. What they tell you about reversibility reaches your cortex, but does not touch the place where fear is, so you still doubt. I have some training in this field, that is why I can tell you a few things. Just let you know that I know why I tell you these things... I posted videos to help work on anger, and might see what I can post about fear....

Maybe you can consider the fear at the same time with the hope? Have some curiosity about this? Respect the 2 aspects and not push back a fear that has its own right to be there is important.

Our society tend to make us ashame of fear, shame on the society for this! And we women are shamed more upon our anger and fight!

Then as a woman, well when we get more mature, we accept more things about men, and this you say can be accepted. I have a girl friend who deals with some of her bf problems, and the most difficult for her is only to make him sure that there is no problem for her! We learn to feel the energy of the other person with all the body, and to feel ours too. It is perfectly possible to have sex with no direct sex and feel wonderfully!

If you knew how many women long for love and tenderness as a general feeling and not only very local! We talk about it among women.... How is this in different countries cultures and age? Dunno...

Also, what you guys deal with is very similar to what many women deal with when they have a bf that is too fast and does not respect her rhythm and forces it. It ruptures communication at subtle level. We humans are like soap bubbles who need to touch other bubbles lightly, to not explode. Only with very sensitive men could I reach this subtlety and take them into a real partner dance. The rest is just what you can make alone but easier with another person!

maybe the big reward will be to feel things differently and to attract sensitive women who need this? Instead of rough colours, a whole artistic palette of so may blues and reds!
 

Ulysses

Member
Messages
29
Sorry Canari but I’m young and I don’t really like the idea of having to find other ways to be sexual. A drug taken for one month should not cause this much damage. And if it does, it shouldn’t be in the market or there should be way more literature about it.

I get your trying to build me up but I went from being a super sexual and potent dude to almost impotent. From 3 weeks of a medication. Seriously wtf even hardcore illegal drugs don’t do this.

I am curious what brought you to the site canari? Do you have a husband or know a guy who took finasteride?

And wuf...... from your earlier posts it looked like you had peyronies. But not fibrosis? Peyronies and cavernosum fibrosis are two totally different balls of wax in my opinion.
 

wuf

Well-Known Member
Messages
880
Ulysses post_id=5224 time=1511812009 user_id=1392 said:
Sorry Canari but I’m young and I don’t really like the idea of having to find other ways to be sexual. A drug taken for one month should not cause this much damage. And if it does, it shouldn’t be in the market or there should be way more literature about it.

I get your trying to build me up but I went from being a super sexual and potent dude to almost impotent. From 3 weeks of a medication. Seriously wtf even hardcore illegal drugs don’t do this.

I am curious what brought you to the site canari? Do you have a husband or know a guy who took finasteride?

And wuf...... from your earlier posts it looked like you had peyronies. But not fibrosis? Peyronies and cavernosum fibrosis are two totally different balls of wax in my opinion.

I really do not remember what the name was...it was 12 years ago.
But, listen to me man, what I am sure is that all tissue in the body can be restored, that is for sure..
I repeat, I am constantly talking with a biolog doctor, and he confirmed me that all tissues can be restored, the thing is to find what need to the tissue to get restored.
And based on what you just told me, why should peyrones be reversible and not fibrosis? They both are a tissue damage, why should one be restored and not the other? Tissue damage means tissue damage, peyrones is depending from some shit and fibrosys from another shit, but DAMAGE is the common word and I did restore it, 100%... it is true that it took time since I had around 3 balls in my penis hurting like crazy and they were almost visible and touceble.
 

vicecaz

Well-Known Member
Messages
256
Ulysses, a lot of people in this board went through this and still are, like myself, you are not a special case
Why would you listen to doctors that says your penis state is irreversible whereas there is people that didn't get an ercetion for years after propecia, and recovered following for example Cdnuts protocol ? Whatever you think you have, and what others have, Peyronies or fibrosis, this is reversible, please read all of the recovery stories available on this board or at swolesource, you'll see

I was already full into PFS state at 18 years old, and still am at 21, the same nightmare as you, I also went through vasoactive drug injection and guess what, it didn't even triggered an erection in my case; reading your posts reminds me of how I was feeling in the beginning
However, now I know this can be beaten, it's not anymore a question of if, but when, and this makes the whole difference. Again, read all of the recovery stories, that's all you need, you will realize what people managed to overcome and your case or mine are not different than some, or worse

Keep your head up, that's a battle, a mix of knowledge to have and action to take
 

Ulysses

Member
Messages
29
[mention]wuf[/mention] tissues heal differently man. Just like skin in the mouth regenerates faster then say eye tissue or heart tissue, etc. Peyronies is just a plaque on the external part of the penis. Fibrosis is the smooth muscle in the penis has died and been replaced by scar tissue resulting in an actually smaller penis. Also I don’t know what a biolog doctor is.

I don’t really buy the cdnuts protocol. They guy didn’t even test his blood ever and most guys who complain about penile shrinkage etc never have the actual ultrasounds showing they have holes in their cock. Literally, the tissue inside my penis is like Swiss cheese. The ultrasound shows a bunch of holes in the tissue due to cell death and this is not allowing the muscles to relax to allow blood in the penis resulting in CVOD. All the literature you read on prostate surgery which kind of has the same effect as what finasteride did to me, those guys get on cialis immediately after and even then they have maybe a 25% chance of regaining function back. Most have to resort to a penile implant or injections for life if they respond to injections. I have never heard of a single case recovering from fibrosis and most guys on the websites like I said say they have fibrosis and that they recovered but when I ask if they actually got an ultrasound done to show the fibrosis none of them had it done they just felt their cock was smaller. Hardly scientific.

I appreciate the bolstering but I have never read anywhere or met anyone who had a test done showing fibrosis, then did some protocol or some treatment, then had another test done showing no fibrosis. The one other guy I met who had fibrosis like me, his name was antcraven and he got a penile implant. Despite doctors being dumb most of the time, the one positive is that they at least can answer whether they have ever had a person recover from fibrosis. Most individuals who have priapism don’t recover unfortunately. Which is why it is such a medical emergency.

As for Peyronies, and fibrosis I think they are totally different. It’s like comparing a cut on your knee to tearing a knee ligament. Some tissue like ligaments and connective tissues can not regenerate. I have a bad knee and that connective tissue that protected my bones is totally worn down from all the marathons and triathlons I used to do in the day..... and no amount of treatment, physio, or well wishing is bringing that back. These are the facts of the body. I can’t comment on peyronies because I don’t have that but I know their are treatments to break down collagen etc. But to bring back actually dead cells..... which is what I have, holes where the cells have died.... the only thing that could cure that is stem cell therapy or some form of gene therapy which hasn’t been invented yet. Goldstein says it is in the clinical trials right now.
 

brix

Well-Known Member
Messages
593
Ulysses post_id=5186 time=1511789993 user_id=1392 said:
biggest stress is the fear of reversibility, never having a wife or kids, and potentially losing my dream job.

My doctor forgot to prescribe me cialis on my last visit which was super annoying. So now I have to wait two more weeks to get it and cialis is not cheap at all.

I will be taking 5 mg every night before bed. I have read after prostate surgery you have to take it right away though and that immediate treatment is important to regaining erections, and anything after 4 months is pretty much permanent. This was an excerpt I read from a doctor who performs these surgeries. I am now 7 months off so I am pretty sure things are past the healing point now. Who knows anymore.

I am a fighter man and have been all my life but literally everything I loved and cherished in my life is gone now. My fiance, my sexual mental and physical health, and my dream job (still not lost but in jeopardy). So yah things are rough right now. The will to keep fighting is pretty much gone, especially with something that a doctor tells you is irreversible.

How do you break that to a woman your dating? That your dick doesnt work and you have to inject it before sex, or that you have a penile implant. With my job I can't even take viagra as I operate very important machinery. They make you disclose all medications you take and if an accident occurs and they draw blood and find meds you are ruined. (JAIL)

Just order it from peptide sites. It’s liquid and it works. Pm me for a link if u want
 

TubZy

Well-Known Member
Staff member
Messages
2,591
Ulysses post_id=5241 time=1511818807 user_id=1392 said:
@wuf tissues heal differently man. Just like skin in the mouth regenerates faster then say eye tissue or heart tissue, etc. Peyronies is just a plaque on the external part of the penis. Fibrosis is the smooth muscle in the penis has died and been replaced by scar tissue resulting in an actually smaller penis. Also I don’t know what a biolog doctor is.

I don’t really buy the cdnuts protocol. They guy didn’t even test his blood ever and most guys who complain about penile shrinkage etc never have the actual ultrasounds showing they have holes in their cock. Literally, the tissue inside my penis is like Swiss cheese. The ultrasound shows a bunch of holes in the tissue due to cell death and this is not allowing the muscles to relax to allow blood in the penis resulting in CVOD. All the literature you read on prostate surgery which kind of has the same effect as what finasteride did to me, those guys get on cialis immediately after and even then they have maybe a 25% chance of regaining function back. Most have to resort to a penile implant or injections for life if they respond to injections. I have never heard of a single case recovering from fibrosis and most guys on the websites like I said say they have fibrosis and that they recovered but when I ask if they actually got an ultrasound done to show the fibrosis none of them had it done they just felt their cock was smaller. Hardly scientific.

I appreciate the bolstering but I have never read anywhere or met anyone who had a test done showing fibrosis, then did some protocol or some treatment, then had another test done showing no fibrosis. The one other guy I met who had fibrosis like me, his name was antcraven and he got a penile implant. Despite doctors being dumb most of the time, the one positive is that they at least can answer whether they have ever had a person recover from fibrosis. Most individuals who have priapism don’t recover unfortunately. Which is why it is such a medical emergency.

As for Peyronies, and fibrosis I think they are totally different. It’s like comparing a cut on your knee to tearing a knee ligament. Some tissue like ligaments and connective tissues can not regenerate. I have a bad knee and that connective tissue that protected my bones is totally worn down from all the marathons and triathlons I used to do in the day..... and no amount of treatment, physio, or well wishing is bringing that back. These are the facts of the body. I can’t comment on peyronies because I don’t have that but I know their are treatments to break down collagen etc. But to bring back actually dead cells..... which is what I have, holes where the cells have died.... the only thing that could cure that is stem cell therapy or some form of gene therapy which hasn’t been invented yet. Goldstein says it is in the clinical trials right now.

I don't see why you wouldn't give fasting a shot first. It can trigger stem cell regeneration of the immune system I don't see why it can't on other parts of the body. You will also break up fibrosis too.

https://news.usc.edu/63669/fasting-triggers-stem-cell-regeneration-of-damaged-old-immune-system/


If that doesn't sound good to you, you could try red light therapy too and shine it directly on it.
 

wuf

Well-Known Member
Messages
880
Ulysses post_id=5241 time=1511818807 user_id=1392 said:
@wuf tissues heal differently man. Just like skin in the mouth regenerates faster then say eye tissue or heart tissue, etc. Peyronies is just a plaque on the external part of the penis. Fibrosis is the smooth muscle in the penis has died and been replaced by scar tissue resulting in an actually smaller penis. Also I don’t know what a biolog doctor is.

I don’t really buy the cdnuts protocol. They guy didn’t even test his blood ever and most guys who complain about penile shrinkage etc never have the actual ultrasounds showing they have holes in their cock. Literally, the tissue inside my penis is like Swiss cheese. The ultrasound shows a bunch of holes in the tissue due to cell death and this is not allowing the muscles to relax to allow blood in the penis resulting in CVOD. All the literature you read on prostate surgery which kind of has the same effect as what finasteride did to me, those guys get on cialis immediately after and even then they have maybe a 25% chance of regaining function back. Most have to resort to a penile implant or injections for life if they respond to injections. I have never heard of a single case recovering from fibrosis and most guys on the websites like I said say they have fibrosis and that they recovered but when I ask if they actually got an ultrasound done to show the fibrosis none of them had it done they just felt their cock was smaller. Hardly scientific.

I appreciate the bolstering but I have never read anywhere or met anyone who had a test done showing fibrosis, then did some protocol or some treatment, then had another test done showing no fibrosis. The one other guy I met who had fibrosis like me, his name was antcraven and he got a penile implant. Despite doctors being dumb most of the time, the one positive is that they at least can answer whether they have ever had a person recover from fibrosis. Most individuals who have priapism don’t recover unfortunately. Which is why it is such a medical emergency.

As for Peyronies, and fibrosis I think they are totally different. It’s like comparing a cut on your knee to tearing a knee ligament. Some tissue like ligaments and connective tissues can not regenerate. I have a bad knee and that connective tissue that protected my bones is totally worn down from all the marathons and triathlons I used to do in the day..... and no amount of treatment, physio, or well wishing is bringing that back. These are the facts of the body. I can’t comment on peyronies because I don’t have that but I know their are treatments to break down collagen etc. But to bring back actually dead cells..... which is what I have, holes where the cells have died.... the only thing that could cure that is stem cell therapy or some form of gene therapy which hasn’t been invented yet. Goldstein says it is in the clinical trials right now.

Biolog is biologist. Sorry for my english.
He told me different times that all tissue can be recovered and regenerated, also cartilage.
He perfectly knows that doctors and medicine tell you it is not, but it is.
So, in my opinion you should try to find a biologist, or a serious researcher that can give you a deeper help.
Doctors dont even know some stuff and there is no way to keep asking to them and that category.
Tissues can be restored.
 

Ulysses

Member
Messages
29
I tried a 7 day water fast. Didn’t really feel any benefits. Actually felt worse.

[mention]brix[/mention] what are you referring too? What liquid something or other.
 

wuf

Well-Known Member
Messages
880
Translate it:

la fibrosi dei corpi cavernosi è una patologia caratterizzata dalla formazione di placche fibrotiche all'interno della tunica albuginea del pene.

Questa malattia è facilmente associata a curvature anomale del pene durante l'erezione e nelle fasi più avanzate della malattia possono subentrare disturbi dell'erezione.

Una recente osservazione che antigeni HLA della classe II sono più comuni in uomini con una fibrosi del pene fa ritenere molto suggestiva anche una concausa autoimmunitaria.

La malattia presenta un decorso molto variabile e per questo motivo il trattamento deve essere all'inizio di tipo farmacologico, conservativo con l'utilizzo di prodotti a base di vitamina E, farmaci antiinfiammatori ed “antifibrotici” (tra questi vi è il PABA, cioè l’acido parammino benzoato di potassio).

Sono state provate anche altre terapie come gli ultrasuoni, la diatermia, la laserterapia, le iniezioni intraplacca di farmaci antiinfiammatori.
 

Ulysses

Member
Messages
29
yah man. thats talking about peyronies. Fibrosis in the tunica albigans....... thats peyronies. Fibrosis in the corpus cavernosum is what I have.
 

wuf

Well-Known Member
Messages
880
Ulysses post_id=5256 time=1511823063 user_id=1392 said:
yah man. thats talking about peyronies. Fibrosis in the tunica albigans....... thats peyronies. Fibrosis in the corpus cavernosum is what I have.

la fibrosi dei corpi cavernosi MEANS Fibrosis in the corpus cavernosum
 

Ulysses

Member
Messages
29
I translated your text and it says that corpora cavernosum fibrosis is when plaques form in the tunica abligans.... so that doesn’t seem correct to me.
 

TubZy

Well-Known Member
Staff member
Messages
2,591
Ulysses post_id=5250 time=1511821682 user_id=1392 said:
I tried a 7 day water fast. Didn’t really feel any benefits. Actually felt worse.

@brix what are you referring too? What liquid something or other.

Why don't you try longer? 7 days IMO is not enough, it isn't enough for really even targeting PFS in general let alone a more serious isolated condition. I at least did 10 days and it wasn't until say 7 or 8 where I noticed the best. Try a 21 or 30 day fast.

Try red light therapy?

High dose K2 Mk4??

Many people here gave you great suggestions, if you truly think that what you have is irreversible and don't want to do anything about it, then that is your choice. Why don't you try some of these suggestions in the real world before writing them off right away just because your "doctor" said it won't work? If you want my honest opinion, I think it will resolve once you fully cure PFS and androgens are restored back into the tissue for healing. DHT is a strong antagonist of cortisol and was shown to help restore tissue.

I get where you are coming from but not having this turn into PH/solve PFS with the constant "don't want to put in any work" "my doctor said so etc" and negativity...
 

Nina

Well-Known Member
Messages
960
Have u done a hairtest yet
 

Ulysses

Member
Messages
29
[mention]TubZy[/mention] I have put in a ton of work man. 7 months of supplements. Exercise. Living well. Several short fasts followed by a long one. Spent thousands of dollars on tests, PRP treatments. Pelvic floor physio. Etc. But at the end of the day. Things are just getting worse. My penis has gotten progressively worse over the past 7 months and not better one bit. My testosterone has doubled. It’s now 556. Sensitive estradiol is in a good range. My libido and mind seems to be somewhat recovering yet my dick gets progressively worse every day. So that’s why I am starting to lose hope in that department.