Eskimojoe PFS Log

[eskimojoe]

Hi all

Im a 29 year old male, I took fin for 4 years and minimal sides, it had dramatic impact on my hair. c 1 month after tapering off the drug I experienced a period of high stress at work and work up one morning with a shrunken desensitised penis. This 2 years ago was my only side. The sensitivity returned but penis does not work properly and has "venous leak" type symtoms. I lose an erection sfter 30 sevonds if I stand up

I have spent thousands visiting urologists in the uk over the last 2 years. I have had 3 dopplers. I failed one badly and was diagnosed with a venous leak. The other 2 were when I was taking daily cialis snd exhibited perfect bloodflow and no scarring or abnormalities, despite minimal reaction to the caverject injection

I went to a an endocrinologist who said myhormones were perfect, despite above range SHBG, prolactin and low vitamin d. I was prescribed cabergoline but this did nothing

I went back to my urologist who prescribed shockwave therapy as he thinks i have damaged smooth muscle tissue in my penis. I am on the second session and its gotten even worse. Whats more the daily cialis which was previously effective has stopped

My symtoms seem to oscillate in cycles where I vary between 0pc to 50pc for periods of weeks, which is why i believe there is some hormonal issue at play here despite what the endo said

I am at my wits end and am looking for help. Impotent at 29

Firstly,

1is there anyone out there with symtoms like mine? How did they progress over time?

2 There are many treatments mentioned on here, ella, progesterone etc What do people think is the best protocol for my situation?

Thanks a lot, any help appreciated

 

[stupidfreak]

Hi all

Im a 29 year old male, I took fin for 4 years and minimal sides, it had dramatic impact on my hair. c 1 month after tapering off the drug I experienced a period of high stress at work and work up one morning with a shrunken desensitised penis. This 2 years ago was my only side. The sensitivity returned but penis does not work properly and has "venous leak" type symtoms. I lose an erection sfter 30 sevonds if I stand up

I have spent thousands visiting urologists in the uk over the last 2 years. I have had 3 dopplers. I failed one badly and was diagnosed with a venous leak. The other 2 were when I was taking daily cialis snd exhibited perfect bloodflow and no scarring or abnormalities, despite minimal reaction to the caverject injection

I went to a an endocrinologist who said myhormones were perfect, despite above range SHBG, prolactin and low vitamin d. I was prescribed cabergoline but this did nothing

I went back to my urologist who prescribed shockwave therapy as he thinks i have damaged smooth muscle tissue in my penis. I am on the second session and its gotten even worse. Whats more the daily cialis which was previously effective has stopped

My symtoms seem to oscillate in cycles where I vary between 0pc to 50pc for periods of weeks, which is why i believe there is some hormonal issue at play here despite what the endo said

I am at my wits end and am looking for help. Impotent at 29

Firstly,

1is there anyone out there with symtoms like mine? How did they progress over time?

2 There are many treatments mentioned on here, ella, progesterone etc What do people think is the best protocol for my situation?

Thanks a lot, any help appreciated

Wow,no replies for almost a month,cmon guys.

1.Yep thats me.Looked up venous leak and describes my situation.But i also have 0 libido.So theres that.Early off the drug,still fluctuating erections from real weak ones to pre-fin hard rocks.

2.Youll have to see for yourself.Understand that guys on this forum are experimenting,thats the whole purpose.Were not doctors,theres no single protocol to cure this.Youll have to trial and error it.Like with most diseases.Some people die from simple cold,some people recover from inoperable cancer.Everybody reacts diffrent to everything,thats why we got pfs in the first place.

That sounds crazy and all,but more i think about it the more it makes sence.A lot of real documented medical,scientific treatments were discovered by trial and error/crazy theories/accident.Look up shock insulin therapy for people with schizophrenia or how penicillin were discovered.

Common thing with guys with pfs is that seeing doctors wont help.They wont even know whats wrong with you.Our condition is rare,we dont even know whats the root.Neurosteroids,androgene receptors,hypothalamus,autoimmune disorder,epigenetic disorder...Thats the theories i can remember at the top of my head.Several of them are mentioned at different wiki pages on 5ar and dht related stuff lol.It might even be that its all at the same time.Hormonal imbalance/receptors damage causing physical changes to penis structure.

Im also at my wits end,and im 23.Just look at my posts,its crazy.Mtf thoughts,suicide thoughts...Hang in there.

 

[TubZy]

Hi all

Im a 29 year old male, I took fin for 4 years and minimal sides, it had dramatic impact on my hair. c 1 month after tapering off the drug I experienced a period of high stress at work and work up one morning with a shrunken desensitised penis. This 2 years ago was my only side. The sensitivity returned but penis does not work properly and has "venous leak" type symtoms. I lose an erection sfter 30 sevonds if I stand up

I have spent thousands visiting urologists in the uk over the last 2 years. I have had 3 dopplers. I failed one badly and was diagnosed with a venous leak. The other 2 were when I was taking daily cialis snd exhibited perfect bloodflow and no scarring or abnormalities, despite minimal reaction to the caverject injection

I went to a an endocrinologist who said myhormones were perfect, despite above range SHBG, prolactin and low vitamin d. I was prescribed cabergoline but this did nothing

I went back to my urologist who prescribed shockwave therapy as he thinks i have damaged smooth muscle tissue in my penis. I am on the second session and its gotten even worse. Whats more the daily cialis which was previously effective has stopped

My symtoms seem to oscillate in cycles where I vary between 0pc to 50pc for periods of weeks, which is why i believe there is some hormonal issue at play here despite what the endo said

I am at my wits end and am looking for help. Impotent at 29

Firstly,

1is there anyone out there with symtoms like mine? How did they progress over time?

2 There are many treatments mentioned on here, ella, progesterone etc What do people think is the best protocol for my situation?

Thanks a lot, any help appreciated

Hey man, sorry not sure why this is in PSSD section, prob why not one saw it.

Check out the links in my signature and also Electrolyte Protocol for Improved Health

Unfortunately, serum hormone levels aren't that relevant with this condition, more or less comes down to how sensitive you are to them now. For blood flow, try warm dead sea salt baths, it will help restore blood flow back while you are fixing the underlying issue.

 

[stupidfreak]

Also i understand you here.Same pattern of thoughts with me,always asking about how bad other guys had it and stuff.There are several guys here whos situation are as bad as yours.Mine is even worse.