MTHRFR and PFS question for gbolduev

R

Reverse

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Do you think there is a relationship between the two? Considering that MTHRFR and PFS have very similar symptoms.

I've seen a few guys with PFS test positive for it and I'm thinking it's possible one causes the other.

What do you think?
 
Canari

Canari

Member
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1,609
Your question is super good for many reasons!

- Most people take fin without having those problems. If more people were reacting, then the drug would not be sold anymore!
-> necessity to find out why some people react.

- Nina has got some similar issues as fin, and never took fin. See gbol last answers in her log.

- I have gene test and some of these variations, and pfs I do not have. But somehting that has to do with fatigue, histamine, variations in libido, copper and zinc levels, good reaction only at first when taking methylcobalamine...

- I posted some link some days ago... and they were from a website of a woman dealing with MTHFR and telling that genes can be turned on or off... This was a link about WHY some people react bad when taking methylFOLATE.
 
R

Reverse

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@Canari
I agree, If theres a cause/effect between the two, the drug might get banned

@everyone else
I know that many of us may not want to consider the relation between the two. But, we need to be realistic. We get closer to solutions the more we discover.

I hypothesize that PFS might be a cause of MTHFR.
There are atleast 6 PFS cases that I know of which tested positive for it. If this is the case then there are known ways to hack the issue, instead of doing more trial and error.
Just want to add...I believe zinc-finger and other protocols can work but I also believe a clearer light on things can be helpful.

Hopefully there is no correlation between the two but if there is, at least we know a bit more of what we're dealing with. We'll be closer to defeating this.
I'll most likely get the test for this, and no matter what it shows, I'll hack myself to recovery and then test again.
Guys let's tackle this from all angles!
 
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tanedout

tanedout

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Reverse said:
Do you think there is a relationship between the two? Considering that MTHRFR and PFS have very similar symptoms.

I've seen a few guys with PFS test positive for it and I'm thinking it's possible one causes the other.

What do you think?
Click to expand...

I wondered that and tried to collect 23andme data on one of the accutane forums in the past, and there doesnt seem to be a link - lots of people without the defect still have all the sides.

A guy called Mario on one of the CFS forums has collected and analysed lots of 23andme data from people with CFS, PSSD, PFS, PAS etc and has found some trends but I don't know in detail what they are

Here's his webpage;

Machine Learning, NLP and Network Analysis-Guided Medical Research : A Case Study

Some of the most relevant candidate Medical Topics were found to be the following shown Table 1 (list is not inclusive) :


1) Sulfation

2) Bile Acid Homeostasis

3) Vitamin K Metabolism

3) Carboxylation

4) Urea Cycle

5) Adrenal Insufficiency
Click to expand...
 
Canari

Canari

Member
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tanedout said:
I wondered that and tried to collect 23andme data on one of the accutane forums in the past, and there doesnt seem to be a link - lots of people without the defect still have all the sides.
Click to expand...
There can still be a link! ONE of the links! Those who do not have this "defect" can have something else.
As there are different drugs that gives similar issues, there can also be different backgrounds that give similar issues....
 
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Snow1

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Hi Guys

I found this thread really interesting as I also tested positive for having a mutation on the MTHFR gene - see attached.

PFS suffer for over 8 years now.
 

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MNK99

MNK99

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Anyone else get this gene tested... I may very well have mutations there, having more than 1 post-drug disorder. Also, all my neuro-psyche stuff.
-Cost of test?
-Waiting period?
-What do you do after finding out you have this mutation?
-How does it relate to Mast Cell Disease /MCAD?
-How annoying.
-Those MTHrFkRs.
 
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S

Slayo

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534
MTHFR has nothing to do with pfs, it is a very common mutation, so common that i think if it really played a role we should see 50% of people that take fin getting pfs
 
H

hairsuit

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M_Mitchell08 said:
Very interesting, especially since my symptoms started after taking minoxidil. I was fine on propecia.
Click to expand...
I have MTHFR mutation as well. Still using minox. Never thought for a second that it could be causing any of this. It is interesting, this fall I started dermatolling for the first time in the 15 or so years I had been treating hair loss. Coincidentally it was the same time I tried to start back up on Fin. That’s when I crashed. So who knows what caused what. Still dermarolling, still using minox. What do you think in minox could react with our systems this way? Fin makes complete sense.
 
M

M_Mitchell08

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138
hairsuit said:
I have MTHFR mutation as well. Still using minox. Never thought for a second that it could be causing any of this. It is interesting, this fall I started dermatolling for the first time in the 15 or so years I had been treating hair loss. Coincidentally it was the same time I tried to start back up on Fin. That’s when I crashed. So who knows what caused what. Still dermarolling, still using minox. What do you think in minox could react with our systems this way? Fin makes complete sense.
Click to expand...

Funny, I am dermarolling too. And using a LLLT. But I'm not sure man and honestly, I don't know if we'll ever know what caused us to crash. Minox has been shown to be anti-androgenic, but that isn't necessarily what caused the crash with Fin. I think the body just gets naturally out of whack and we keep feeding it stuff it doesn't want and one day, boom.
 
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Snow1

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180
I’m waiting for my ARL test results and going to run a 3-6 month program then I’m going to follow that with hydrogen water to hope this levels things back out again, I feel the best way to fight this is through a natural approach to cleans things out. 10y suffer here.
 
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hairsuit

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Messages
460
Snow1 said:
I’m waiting for my ARL test results and going to run a 3-6 month program then I’m going to follow that with hydrogen water to hope this levels things back out again, I feel the best way to fight this is through a natural approach to cleans things out. 10y suffer here.
Click to expand...
Is there any reason to not ARL AND hydrogen water? Was thinking of running both at once.
 
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